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PI Perspective 25: Women at the Conference


Project Inform - September, 1998


While the recent 12th World AIDS Conference in Geneva provided no real surprises for women living with HIV, the conference surged forward by having numerous sessions specifically dedicated to the treatment and care of HIV+ women. There were sessions on Clinical Care of Women with HIV and Mother-to-Child HIV Transmission, as well as others devoted to prevention strategies for women, breast-feeding and body shape changes in women (see Therapy Side Effects Update).

Together, these served as a clear reminder of the social, psychological and biological needs that women face in this epidemic. In addition, meetings were called by the International Community of Women living with HIV/AIDS and the International AIDS Society Women's Caucus to discuss the global needs of women in the epidemic. While there is still much work to be done, it was encouraging to see women's treatment activism beginning to flourish around the world.

Researchers have begun to look specifically at the use and effectiveness of anti-HIV therapies and therapies for gynecological conditions in women (see Treatment of Gynecological Conditions in Women). But we still need to learn more about the interaction between HIV and the menstrual cycle, hormone replacement therapy, birth control, pregnancy and other issues specific to women. While some research is already underway to shed light on these issues, some areas, particularly the role of hormone replacement therapy, remain inadequately addressed by current research efforts.

Although we are seeing some slight differences in side effects and drug levels in women, more significant differences may lie in other non-biological areas, such as access to treatment and access to physicians experienced in treating people with HIV. Recent data from the National HIV/AIDS Treatment Survey indicate that women are less likely than men to receive care from physicians experienced in treating people with HIV and that women tend to be at more advanced stages of HIV disease when they first see a doctor. The result is that many women receive substandard care and therefore tend to experience disease progression sooner after an HIV diagnosis. This is certainly not true for all women, but it is especially common for women who are seeing less experienced physicians or who are more advanced in their HIV disease when they are diagnosed.

AIDS research must continue to address the concerns of women with HIV from a broader perspective, examining the women-specific treatment concerns but also the needs of women in our changing health care system. The Geneva conference's focus on women and children was encouraging and credit should be given to all the women living with HIV/AIDS, their advocates, caregivers and the researchers who continue to contribute to meaningful advances in information specific to women.

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Always watch for outdated information. This article first appeared in 1998. This material is designed to support, not replace, the relationship that exists between you and your doctor.

©1998. This document is copyrighted by Project Inform, 205 13th Street, #2001, San Francisco, CA 94103. Treatment Hotline: 800-822-7422 (toll-free) or 415-558-9051 (in the San Francisco Bay Area and internationally) All Project Inform materials may be reprinted and/or distributed without prior permission. However, reprints may not be edited and must include the following text: "From Project Inform, for more information contact the Project Inform National HIV/AIDS Treatment Hotline, 800-822-7422." For permission to edit any Project Inform material for further publication, contact David Evans at the Project Inform office.

Project Inform, established in 1985 as a national, non profit, community-based HIV/AIDS treatment information and advocacy organization, serves HIV-infected individuals, their care-givers, and their healthcare and service providers through its national, toll-free treatment hotline, the PI Perspective and other information publications, educational Town Meetings, on-line services and research and drug access advocacy programs. All information is available free of charge; donations are strongly encouraged. For more information, contact the Project Inform National HIV/AIDS Treatment Hotline. Email: web@projinf.org; Website: http://www.projinf.org.

The original of this article can be found at http://www.projinf.org/pub/25/women.html


This information is designed to support, not replace, the relationship that exists between you and your doctor.
©1998. AEGiS.