Have it Your Way

    BY ROBERT DIGIACOMO
    WITH NO CULTURAL GROUP GOING UNTOUCHED BY HIV ANY LONGER, IS YOUR AIDS SERVICE ORGANIZATION MEETING YOUR SPECIFIC NEEDS?

    Us Helping Us, People Into Living Inc.'s name speaks volumes about its mission: The organization was founded in 1985 to help African-American bisexual and gay men in Washington, D.C., grapple with HIV and AIDS at a time when the disease's support system was perceived as being primarily for white gay men.

    Fifteen years later, the organization has come far from its impromptu beginnings in a D.C. juice bar to become an established agency with a $1 million budget and ten employees. This growth, according to Ron Simmons, Us Helping Us's executive director, reflects the continuing need for bisexual and gay men of color to have an AIDS service organization to call their own.

    "In D.C. the black gay community is quite separate from the white gay community," Simmons says. "We have five or six bars that are solely black-run, and 99% of the people who go there are black. Having that, black gay men are accustomed to being in a black gay environment. Us Helping Us provides that."

    Us Helping Us, which offers prevention programs, holistic health services, case management, and an information hot line, is among dozens of organizations nationwide that have been formed to address the needs of specific demographic groups—among them women, Asians, Latinos, and African-Americans—affected by HIV and AIDS.

    At the epidemic's outset, members of these groups say, the major AIDS service providers did not offer programs that took into account their specific cultural issues and concerns. Even though at many large AIDS service organizations—such as Gay Men's Health Crisis in New York City and AIDS Project Los Angeles—the majority of clients today are not white and programs have evolved to address the changing face of the epidemic, many people still prefer the comfort zone of a smaller, minority-run agency.

    "Research has shown that black folks will change not only the way they speak but what they say when they're in an interracial environment," Simmons says. "It becomes a problem in a support group if people aren't going to be real."

    Indeed, if communication is key to a successful client relationship, then obviously the people who work with the clients have to speak the same language. That was not so obvious in 1991 in San Diego, when a lack of bilingual services led to the formation of PACTO Latino AIDS Organization. "A lot of the Latino community would go to…agencies, and they didn't have Spanish-speaking personnel," says Cesar Enriquez, PACTO's executive director. "Even the clients that did speak English said they weren't treated right. They said they were discriminated against because they were Latino."

    Today, PACTO continues to fill a service gap by offering bilingual case management and prevention-outreach programs, and it runs two transitional shelters—including the only one for the transgendered in San Diego. Still, balancing its $200,000 annual budget is a struggle, according to Enriquez, who relies on federal Ryan White Act funds the county distributes. "If I could find other funding sources, I would drop [the Ryan White funding] completely," Enriquez says. "There is a lot of politics involved."

    In Philadelphia, cultural—and language—barriers led to the founding of AIDS Services in Asian Communities in 1995. Formed in response to the influx of numerous refugees from Vietnam, Cambodia, and Laos, ASIAC offers case management, interpretation services, and culturally sensitive prevention programs. "In the [Asian-Pacific Islander] community, they don't really talk about subjects like homosexuality and drug abuse," says Ronald Sy, ASIAC's executive director. "The general perception is that this doesn't happen in our community—it happens elsewhere."

    ASIAC has carved out a broad role as an AIDS service organization through its official designation as the regional provider for interpreters and translation services for all languages spoken in the area. The interpreters accompany clients when they meet with case managers, visit doctors, and pick up medication at pharmacies. "We feel this is our most important function," Sy notes, "to be a bridge between consumers and providers."

    Language and culture are not the only barriers to attaining the most appropriate services. Even women with HIV who speak English as their first language often feel like their situation is not understood. That is where agencies such as Women Alive, a Los Angeles-based treatment, education, and advocacy organization for women with HIV, come in. Started in 1991 as a program of the AIDS service organization Being Alive, West Hollywood, the women's group went out on its own in 1997.

    "The issues are different for women," explains Women Alive program director Tammy Vitrano. "The stigma is still so strong—the shame and the fear. We just needed a private place for them to come."

    Women Alive offers a range of support programs, including counseling services and a telephone hot line, led by peer educators. Just as important as the organization's services is its ambience, according to Vitrano. "I think our members feel that their needs are met when they come here," she says. "It's more of a personal touch. They're not just another client number. We're on a first-name basis. They know they can come anytime and hang out."

    Still, organizations like Women Alive—with only half a dozen or so staff members and an annual budget typically well under $1 million—cannot provide every service to clients.

    For example, Us Helping Us offers case management but does not have medical services, while Women Alive does not offer case management. ASIAC has a lengthy waiting list for its small case management program, and PACTO Latino must refer clients who need counseling to another agency.

    That is where older, more established organizations can fill gaps in services. How do these much larger entities view their smaller counterparts? Do they see them as competitors or partners in the fight?

    "We don't see it as a we-versus-they opposition," says Ronald Johnson, associate executive director at Gay Men's Health Crisis. "We see it as we're all serving the needs of people who are affected by this epidemic. There is unfortunately more than enough need for all of us to be in there fighting." G

    Where You Can Go
    There are many HIV and AIDS service organizations targeted to specific cultural groups around the country. Here is just a sampling of some of those groups. If you are looking for such a group but cannot find one close to your home in this listing, call one of the locations nearest you to see if it can provide you with information on a closer organization. Listings are alphabetical by state within each region, then alphabetical by city.

    PACIFIC NORTHWEST STATES
    Women's Intercommunity AIDS Resource
    1608 S.E. Ankeny St.
    Portland, OR 97214
    (503) 238-4420
    Babes: A Sisterhood of Women Facing HIV Together
    1001 Broadway Ave., Suite 100
    Seattle, WA 98122
    (206) 720-5566
    Brother to Brother
    (African-American gay, bisexual, and transgendered men focus)
    607 19th Ave. East
    Seattle, WA 98112
    (206) 322-7061, Ext. 211
    International Community Health Services
    (Asian focus)
    606 Maynard Ave. South,
    Suite 102
    Seattle, WA 98104
    (206) 467-0884
    People of Color Against AIDS Network
    (Men and women of color focus)
    607 19th Ave. East
    Seattle, WA 98112
    (206) 322-7061
    Women at Risk
    607 19th Ave. East
    Seattle, WA 98112
    (206) 322-7061, Ext. 230
    WESTERN STATES
    Women at Risk
    5183 Overland Ave., Suite B
    Culver City, CA 90230
    (310) 204-1046
    www.warla.com
    The African-American AIDS, Support Services, and Survival Institute
    160 S. La Brea Ave.
    Inglewood, CA 90301
    (310) 419-1969
    www.amassi.com
    Asian Pacific AIDS Intervention Team
    605 W. Olympic Blvd., Suite 610
    Los Angeles, CA 90015
    (213) 553-1830
    Bienestar Latino AIDS Project
    4955 Sunset Blvd.
    Los Angeles, CA 90027
    (323) 660-9680
    Cara a Cara Latino AIDS Project
    3324 Sunset Blvd.
    Los Angeles, CA 90026
    (323) 661-6752
    Hombre a Hombre
    A program of AltaMed
    5255 Pomona Blvd., Suite 11B
    Los Angeles, CA 90022
    (323) 890-8767
    Women Alive
    1566 S. Burnside Ave.
    Los Angeles, CA 90019
    (323) 965-1564
    www.women-alive.org
    National Native American AIDS Prevention Center
    436 14th St., Suite 1020
    Oakland, CA 94612-2724
    PACTO Latino AIDS Organization
    2828 University Ave., Suite 107
    San Diego, CA 92104
    (619) 563-3622
    www.expresspages.com/p/pactolatino
    Asian and Pacific Islander Wellness Center
    730 Polk St., Fourth Floor
    San Francisco, CA 94109-7813
    (415) 292-3400
    Instituto Familiar de la Raza/Latino AIDS Project
    2639 24th St.
    San Francisco, CA 94110
    (415) 647-5450
    (510) 444-2051
    www.nnaapc.org
    Project WISE (Women's Information Service and Exchange)
    A program of Project Inform
    205 13th St., Suite 2001
    San Francisco, CA 94103
    (415) 558-8669, Ext. 205
    San Francisco Black Coalition on AIDS
    1042 Divisadero St.
    San Francisco, CA 94115
    (415) 346-2364
    Women's AIDS Network
    3543 18th St., Suite 11
    San Francisco, CA 94110
    (415) 431-1180
    Servicios de la Raza
    4055 Tejon St.
    Denver, CO 80211
    (303) 458-5851
    Renaissance III/ Brother 2 Brother Project
    (African-American focus)
    2606 Martin Luther King Blvd., Suite 218
    Dallas, TX 75215
    (214) 421-4343
    Women's HIV Coalition
    1475 W. Gray St.
    Houston, TX 77019
    (713) 935-8530
    MIDWESTERN STATES
    Chicago Women's AIDS Project
    5249 N. Kenmore Ave.
    Chicago, IL 60640
    (773) 271-2070
    El Rincon Supportive Community Project
    (Latino focus)
    1874 N. Milwaukee Ave.
    Chicago, IL 60647
    (773) 276-0200
    Minority Outreach Intervention Project
    (Men and women of color focus)
    1346 S. Michigan Ave.
    Chicago, IL 60605
    (312) 986-0661
    Jewish AIDS Network
    555 Skokie Blvd., Suite 225
    Skokie, IL 60062
    (773) 275-2626
    Project Survival
    (African-American focus)
    1150 Griswold St.
    Detroit, MI 48226
    (313) 961-2027
    Black Indian Hispanic Asian Women in Action
    (Women of color focus)
    122 W. Franklin St., Suite 306
    Minneapolis, MN 55404
    (612) 870-1193
    Chicanos Latinos Unidos en Servicios
    2110 Nicollet Ave.
    Minneapolis, MN 55404
    (612) 871-0200
    Chrysalis (Women focus)
    4432 Chicago Ave. South
    Minneapolis, MN 55409
    (612) 871-0118
    www.chrysaliswomen.org
    Native American Health/AIDS Coalition
    6025 Prospect St., Suite 103
    Kansas City, MO 64130
    (816) 333-7500
    Blacks Assisting Blacks Against AIDS
    625 N. Euclid Ave., Suite 320
    Saint Louis, MO 63108
    (314) 865-1600
    www.shalom.com/janc.htm
    NORTHEASTERN STATES
    Hispanos Unidos Contra el SIDA/AIDS Inc.
    116 Sherman Ave., First Floor
    New Haven, CT 06511
    (203) 781-0226
    AIDS Care Project
    (African-American focus)
    140 Clarendon St., Sixth Floor
    Boston, MA 02116
    (617) 859-3036
    Latino Health Institute
    95 Berkeley St., Sixth Floor
    Boston, MA 02116
    (617) 350-6900
    www.lhi.org
    Lesbian AIDS Project of Massachusetts
    24 Castleton St.
    Boston, MA 02130
    (617) 524-5895
    Massachusetts Asian AIDS Prevention Project
    P.O. Box 120-555
    Boston, MA 02112
    (617) 499-9484
    Multicultural AIDS Coalition
    (African-American focus)
    801-B Tremont St.
    Boston, MA 02118
    (617) 442-1622
    Sociedad Latina Association (Latina focus)
    1530 Tremont St.
    Boston, MA 02120
    (617) 442-4299
    Women of Color AIDS Council/Women Connecting Affecting Change
    407 Blue Hill Ave.
    Dorchester, MA 02125
    (617) 541-1050
    MIDATLANTIC STATES
    Jacobs Institute of Women's Health
    409 12th St. S.W.
    Washington, DC 20024
    (202) 863-4990
    www.jiwh.org
    National Minority AIDS Council
    (Men and women of color focus)
    1931 19th St. N.W.
    Washington, DC 20009
    (202) 483-6622
    Us Helping Us, People Into Living Inc.
    (African-American bisexual and gay men focus)
    811 L St. S.E.
    Washington, DC 20003
    (202) 546-8200
    www.ushelpingus.org
    New Jersey Women and AIDS Network
    5 Elm Row, Suite 112
    New Brunswick, NJ 08901
    (800) 747-1108
    Caribbean Women's Health Association
    (African-American women focus)
    123 Linden Blvd.
    Brooklyn, NY 11226
    (718) 826-2942
    Life Force: Women Fighting AIDS
    175 Remsen, Suite 1100
    Brooklyn, NY 11201
    (718) 797-0937
    People of Color in Crisis
    (African-American focus)
    468 Bergen St.
    Brooklyn, NY 11217
    (718) 230-0770
    Asian Pacific Islander Coalition on HIV/AIDS
    275 Seventh Ave., Suite 1204
    New York, NY 10001
    (212) 620-7287
    Latino Commission on AIDS
    80 Fifth Ave., Suite 1501
    New York, NY 10011
    (212) 675-3288
    Lesbian AIDS Project
    A program of Gay Men's Health Crisis
    119 W. 24th St.
    New York, NY 10011
    (212) 367-1363
    AIDS Services in Asian Communities
    1201 Chesntut St., Suite 501
    Philadelphia, PA, 19107
    (215) 563-2424
    Blacks Educating Blacks About Sexual Health Issues
    1217 Spring Garden St., First Floor
    Philadelphia, PA 19123
    (215) 769-3561
    Gay and Lesbian Latino AIDS Education Initiative
    1233 Locust St., Third Floor
    Philadelphia, PA, 19107
    (215) 985-3382
    www.critpath.org/galaei
    SOUTHERN STATES
    Jefferson County AIDS in Minorities Inc.
    (African-American focus)
    P.O. Box 1116
    Birmingham, AL 35201-1116
    (205) 326-8980
    Aspira of Florida
    (Latino focus)
    3650 N. Miami Ave.
    Miami, FL 33127
    (305) 576-1512
    League Against AIDS/Liga Contra SIDA
    (Latino focus)
    3050 Biscayne Blvd., Suite 509
    Miami, FL 33137
    (305) 576-1000
    Florida Women's AIDS Resource Movement
    11215 N. Nebraska Ave.,
    Suite B3
    Tampa, FL 33612
    (813) 979-1919
    Atlanta Lesbian AIDS Project
    P.O. Box 5409
    Atlanta, GA 30307
    No phone number available
    AIDS Education and Services for Minorities
    (Men and women of color focus)
    2001 Martin Luther King Jr. Dr., Suite 602
    Atlanta, GA 30310
    (404) 753-2900
    Brothers Back 2 Back
    (African-American men focus)
    P.O. Box 11366
    Atlanta, GA 30310
    (770) 593-5805
    Center for Black Women's Wellness
    477 Windsor St. S.W., Room 309
    Atlanta, GA 30312
    (404) 688-9202
    SisterLove Women's AIDS Project
    713 Cascade Ave.
    Atlanta, GA 30310
    (404) 753-7733
    Women With a Vision
    2601 Tulane Ave., Suite 304
    New Orleans, LA 70119
    (504) 827-2880
    Brothers United
    A program of Nashville Cares
    (African-American gay and bisexual men focus)
    209 Tenth Ave. South, Suite 160
    Nashville, TN 37203
    (615) 259-4866
    www.nashvillecares.org
    Community HIV/AIDS Prevention Services
    (African-American focus)
    6301-D Richmond Highway
    Alexandria, VA 22306
    (703) 660-7000
    —Compiled by Bob Adams
      October 2000 November
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      HIV Plus. All rights reserved.