Treatment Issues: Newsletter of Experimental AIDS Therapies - Volume 15, Number 1, January 2001
Cathy Elliott-Lopez — Women Alive, Los Angeles

Living with HIV is a constant learning process. Not only are we forced to learn about the disease itself, but in many instances we must learn the medical jargon that is associated with it.

For those of us who lack a formal medical education, this is often a difficult process. I remember learning during early childhood that there were usually two, and sometimes three, different names for the same part of the human body. There was the common term, which we all learned, like head, arm, etc.; there might be a "kid's" term like "pinkie," and then there was the obscure "medical term." How many of us remember having this one pulled on us in the third or fourth grade? "Psst! Hey, your epidermis is showing!" Mortified, we invariably glanced toward our genital region assuming we had left something unzipped — only to have the other kids laugh and shout, "Epidermis means skin!"

For the majority of us (unless we actually chose to pursue a career in the medical field) our vocabulary of medical terminology stopped growing after high school health class. I recall during the first few years after my diagnosis when I was striving to learn as much as I could about the disease. I attended countless medical updates and conferences only to come out feeling more ignorant than when I went in. It seemed like things that could have been said very simply using good old-fashioned English got twisted around with medical jargon.

But before we criticize the researchers, doctors, and medical professionals in general, we must realize that these powerful, and in many cases, brilliant people to whom we entrust our lives have spent years and years in school to learn this stuff. We really can't expect them to flip back and forth between their world and ours just like that. That's why we need to meet them halfway. It wasn't until I got a grasp of the lingo the docs were using that I started to understand what they were talking about, and in so doing, I began to take charge of my own care.

The Basics

To begin, it must be understood that most medical terminology derives from Latin or Greek. If you didn't study these in school, or even if you did, I suggest you visit the local library and check out a medical dictionary (or perhaps your doctor will let you borrow one). Dorland's Medical Dictionary is a handy one to start with. By no means will you become an expert overnight — remember, it takes years for that. But at least if you can understand some of the words and how they're formed, you'll be well on your way toward making sense of what you read and hear at treatment updates regarding new medications and research data.

Start by looking at the whole word in question. For example "pancytopenia." Then break it down into its various parts. Pan-cyto-penia. In this example, pan means all or total, cyto refers to cells, and penia indicates a deficiency. So the definition of pancytopenia is a deficiency of all blood cells. Got it? O.K.

Let's try another one. How about "lipodystrophy" (I know that's a favorite). Let's break it down. Lipo refers to fat; trophy is talking about growth or development. And anything with the word dys in it has an abnormality. So there it is! Lipodystrophy: An abnormal development of fat. Anyone for liposuction?

Here's an even simpler one, "leukocyte." We've already learned that cyto refers to cells. If you look up the definition of leuko, you'll see that it means white. So a leukocyte would be a white blood cell. Ta-Da! It should now be easy to figure out what leukocytopenia means. And if you knew that erythro means red, how would you say "deficiency of red blood cells" in medical-ese?

All right, so you're not as enthusiastic about this as I am. That's O.K. I'm sure as you gradually learn this stuff you will eventually come across some word (one that you hear all the time but never understand) and you'll be able to use this system to figure it out. I can hear you now, "Aha! So that's what perianal pruritis means. Cool."

20010110
GM150102

Copyright © 2001 - Treatment Issues. Reproduced with permission. Treatment Issues is published twelve times yearly by GMHC, Inc. All rights reserved. Noncommercial reproduction is encouraged. Subscription lists are kept confidential. GMHC Treatment Issues, The Tisch Building, 119 West 24th Street, New York, NY 10011  fredg@gmhc.org  http://www.gmhc.org

AEGiS is made possible through unrestricted grants from Roxane Laboratories, Inc., iMetrikus, Inc., the National Library of Medicine, and donations from users like you. Always watch for outdated information. This article first appeared in 2000. This material is designed to support, not replace, the relationship that exists between you and your doctor.

AEGiS presents published material, reprinted with permission and neither endorses nor opposes any material. All information contained on this website, including information relating to health conditions, products, and treatments, is for informational purposes only. It is often presented in summary or aggregate form. It is not meant to be a substitute for the advice provided by your own physician or other medical professionals. Always discuss treatment options with a doctor who specializes in treating HIV.

Copyright ©1990, 2001. AEGiS & the Sisters of Saint Elizabeth of Hungary. All materials appearing on AEGiS are protected by copyright as a collective work or compilation under U.S. copyright and other laws and are the property of AEGiS and the Sisters of Saint. Elizabeth of Hungary, or the party credited as the provider of the content.