Important note: Information in this article was accurate in 2004. The state of the art may have changed since the publication date.AIDS Community Research Initiative of America (ACRIA) - Spring 2004
*Some materials available in Spanish
The following list includes treatment organizations, websites, and hotlines that we trust and have found useful in our work at ACRIA. Our brief descriptions try to give you an idea of the information available on each site but aren't intended to be complete. Each entry includes the name of the organization or website (often both); the treatment newsletter published (in italics), if any; the website address where applicable; and addresses and phone numbers for organizations that are willing to mail materials if you call or write them. Some agencies have hotlines that provide counseling and referrals to other services. Email addresses are provided for international sites and for many of the sites without other contact information.
We've focused on sources that provide treatment information about HIV, viral
hepatitis, topics of specific relevance to women, and access issues. We
apologize in advance to those organizations that we've invariably
missed - space is a consideration, of course, but we may have simply
overlooked a useful national treatment organization or website. We
welcome your feedback - if you find that a listed resource contains
inaccurate or outdated information, please let us know. Similarly, we
welcome suggestions of additional HIV treatment resources to add to the
list. Please email your suggestions to treatmented@acria.org.
AEGIS (AIDS Education General Information System)
aegis.org
A huge website with dozens of valuable features including:headlines that are updated weekly,
sometimes hourly, from international media that link to abbreviated or full articles about HIV-related topics (not
only treatment); links to law libraries, news services, community treatment newsletters, peer-reviewed journal abstracts, conference abstracts,
many other references; and much more. Great archival material that helps put the history
of the epidemic in context.
AIDS Action Baltimore AIDS Action Bulletin
aidsactionbaltimore.org
2105 N. Charles St., Baltimore, MD 21218
410-837-2437
Archived
articles from AIDS Action Bulletin going back to
2002; information about Out Front, a peer-led HIV prevention program
for young
gay and bisexual men in Baltimore. The annual report and newsletter are
available by calling or writing.
AIDS Community Research Initiative of America (ACRIA) *
acria.org
ACRIA Update
230 W. 38th St., 17th fl., New York, NY 10018
212-924-3934
Community research and education organization.Site includes issues of ACRIA Update,
quarterly treatment newsletter, going back to 1997; Understanding Your Lab
Results, Managing Drug Side Effects, Clinical Trials Explained,
Treatment Issues for Women, and Viral Hepatitis and HIV (English & Spanish);
all available in both PDF and HTML; publications and newsletter are
available for free to people with HIV and community-based organizations
by calling, writing, or completing online order form. The site includes
TrialSearch@acria.org, a growing, searchable database of enrolling HIV-related trials throughout
the United States.
AIDS Survival Project
aidssurvivalproject.org
Survival News
139 Ralph McGill Blvd., Ste. 201, Atlanta, GA 30308
404-874-7926
Site includes a listserve for announcements and their newsletter, Survival
News. Call, email, or snail mail them for information and they’ll send you as much as they can track down. They
have an extensive treatment resource library in their Atlanta center, hold seminars for
newly diagnosed people or those who want treatment information from the bottom up.
AIDS Treatment
Activists Coalition
atac-usa.org
National coalition of AIDS treatment activists working
together to end the AIDS epidemic by advancing research on HIV/AIDS.
Site includes materials relating to current advocacy issues and a new
newsletter describing the coalition’s activities. Allows people to
register for inclusion in email discussions and gives people the opportunity to get
involved in activist discussion and action.
AIDS Treatment Data
Network (The Network) *
atdn.org
611 Broadway, Ste. 613, New York, NY 10012
212-260-8868 / 800-734-7104 (New York State only)
Fact sheets about available antiretroviral medications,
opportunistic infections, HIV treatment issues in plain English and in
Spanish. Write or call for copies of fact sheets. Parts of the website are
devoted to information about HIV/HCV coinfection. The Network also provides case management as well as
referrals over the phone, although it is not a counseling hotline. The Access Project
collects and distributes information about medications and other resources
available through Medicaid, AIDS Drug Assistance Programs (ADAPs), and
industry-sponsored patient assistance programs. Contact The Access Project by calling The
Network or sending an email to TheAccessProject@aol.com.
AIDS Treatment News
aids.org/atn
c/o Philadelphia FIGHT, 1233 Locust St., 5th fl., Philadelphia, PA 19107
800-TREAT-1-2 (800-873-2812)
Searchable archive of invaluable bimonthly treatment
newsletter, published since 1986. Call or write to subscribe via email
or hard copy. The archives provide a fascinating history of the treatment
concerns and advocacy of the HIV community over the years.
AIDSHotline.org*
www.aidshotline.org
California Hotline: 800-367-AIDS (800-367-2437) English and Spanish San
Francisco and outside of CA: 415-863-AIDS (415-863-2437)
9 am-5 pm Mon, Wed, Thurs & Fri, 9 am-9 pm Tuesdays
(PST).
Searchable database of 1,200 organizations that provide
HIV/AIDS & STD services in California; cooperative effort of the
San Francisco AIDS Foundation, San Francisco Department of Pubic Health,
and California Department of Health Services; excellent Frequently Asked
Questions about HIV, STDs, Hepatitis, Crystal Meth, and more.
AIDSinfo * HIV/AIDS Treatment
Information Service
aidsinfo.nih.gov
PO Box 6303, Rockville, MD 20849-6303
800-448-0440 (English, Spanish, and Portuguese, 12-5 pm EST)
TYY: 888-480-3739 / International: 301-519-0459
A website of the U.S. Department of Health and Human
Services; contains current and archived guidelines, including those for
the use of antiretroviral agents in adults, pediatrics, and to prevent
mother-to-child transmission; a glossary of terms; fact sheets and information relating
to the guidelines, medications, vaccines, and clinical trials. Call or write for more
information.
AIDSmap
aidsmap.com
Lincoln House, 1 Brixton Rd., London SW9 6DE England
Phone: 44 (0) 20 7840 0050 Email: info@nam.org.uk
Comprehensive website providing detailed information about all aspects of HIV, the immune system,
current and investigational antiretrovirals, opportunistic infections, prevention, and much more. Includes the
latest news, links to organizations around the world, and various publications. One of the best!
AIDSmeds.com
AIDSmeds.com
Treatment information, news, and question & answer forums. The site enables you to check drug-drug and drug-food
interactions. There's also a tool to graph your lab results.
The site also includes basic information for people who are newly diagnosed.
Alternative
Medicine Homepage
www.pitt.edu/~cbw/altm.html
Definitions of various alternative therapies; links to lists
of complementary and alternative medicine (CAM) providers and related
databases and websites.
American Foundation for AIDS Research (amfAR) *
amfar.org
HIV/AIDS
Global Link / Treatment Insider
120 Wall St., 13th fl., New York, NY 10005
212-806-1639
Articles about various HIV-related issues, including treatment, often with a global focus.
Click on the amfAR Global Link on the left of the screen to access Treatment Insider in English, French,
Spanish, or Chinese as well as a lot of other useful information. The HIV/AIDS Global Link
can be ordered online and is free to the HIV/AIDS community. This site has lots
of valuable content but is somewhat difficult to navigate. Write or call for hard copies of amfAR publications.
The American Liver Foundation (ALF) *
liverfoundation.org
75 Maiden Ln., Ste. 603, New York, NY 10038
800-GO-LIVER (800-465-4837)
Brochures and information about liver disease available online (hard copies can be ordered for a fee);
contact information for local chapters nationally; and a list of national and local clinical trials
relating to liver disease. Call to get information about liver problems and for referrals.
American Medical Association
ama-assn.org
Journal of the American Medical Association (JAMA)
515 N. State St., Chicago, IL 60610
312-464-4147 Email: srt@ama-assn.org
Free registration allows full text access to JAMA's research
articles, review articles, special communications, and editorials six
months to five years after publication. More recent issues require a subscription.
American Social Health Association (ASHA) *
ashastd.org
PO Box 13827, Research Triangle Park, NC 27709-9940
919-361-8400 / National Herpes Hotline: 919-361-8488
Information about sexually transmitted diseases, fact sheets, a sexual health glossary,
and illustrated instructions about how to properly use female and male condoms. Call or write, and ASHA will try
to send you information, although it's primarily web-based. Clear and helpful site map.
The Antiretroviral Pregnancy Registry
apregistry.com
1011 Ashes Dr., Wilmington, NC 25405
US & Canada: 800-258-4263 / International: 910-256-0238
A voluntary, observational study designed to collect and evaluate information on the outcomes
of pregnancy exposures to antiretroviral medications. Women are enrolled through their healthcare providers
only. Healthcare providers may call or write for further information.
Asian & Pacific Islander Coalition on HIV/AIDS (APICHA)
www.apicha.org
APICHA News / Navigator
150 Lafayette St., 6th fl., New York, NY 10013
212-334-7940 / Infoline: 866-APICHA-9 (866-274-2429)
Available in Urdu, Bengali, Hindi, Thai, Japanese, Korean, Tagalog, Mandarin, and Cantonese.
New York-based AIDS service organization dealing with health issues in the Asian & Pacific Islander
population. Navigator is an excellent guide covering treatment issues, benefits, and other topics
pertinent to people living with HIV - available in Bengali, Chinese, English, Hindi, Japanese, Korean,
Thai, and Vietnamese. Copy the order form on the website and fill it out - the first copy is free.
Call the Infoline for information and copies of APICHA publications. Requests for materials may also be
made by mail.
Association of Nurses in AIDS Care (ANAC)
HIV + Nurse
anacnet.org
3538 Ridgewood Rd., Akron, OH 44333-3122
330-670-0101 / 800-260-6780
Primarily meant for nurses and other healthcare professionals, the site includes PDF versions of ANAC's quarterly
newsletter, which is also for lay people, HIV + Nurse, as well as other treatment and symptom management information.
Call or write for copies of HIV + Nurse.
Association of Nutrition Services Agencies (ANSA)
aidsnutrition.org
1030 15th St. NW, Ste. 860, Washington, DC 20005-1511
202-289-5651
Helpful fact sheets on nutrition as it relates to various HIV medications, drug side effects, and HIV disease.
PDF version of Nutrition Guidelines for Agencies Providing Food to People Living with HIV Disease is available to view and download.
AVERT
+44-01403 210202 Email: confidential@avert.org
www.avert.org
International AIDS charity based in England; includes PDF versions of booklets for young people and adults about HIV treatment,
sexually transmitted diseases, and other topics; information and statistics about the global epidemic; quizzes that can be useful
as educational tools; a detailed history of the epidemic; and much more.
Babes Network *
babesnetwork.org
BABES Talking (English & Spanish)
1120 E. Terrace, Seattle, WA 98122
206-720-5566 x 12 / Toll-free: 888-292-1912
Site for women with HIV/AIDS; treatment information, personal stories, support groups, peer counseling; and issues of BABES Talking
newsletter going back to 1998. Email, call, or write to receive copies of the newsletter.
Being Alive: People with HIV/AIDS Action Coalition *
beingalivela.org
Being Alive Newsletter
621 N. San Vicente Blvd., West Hollywood, CA 90069
310-289-2551
Advocacy and information organization. Site includes information about current political actions, prevention oriented chat
rooms, and links. The Being Alive Newsletter is available online going back to 1996. You can also call or write to
receive the newsletter.
The Body *
thebody.com
Comprehensive site offering treatment information from a variety of sources, including community periodicals, conference
coverage, and recent news. Site also has forums to submit questions to the site's medical consultants on issues ranging
from hepatitis C/HIV coinfection to lipodystrophy to nutrition and exercise. Check out the women's section (profiles, articles, and
question & answer forum):
www.thebody.com/features/women
Body Positive *
bodypos.org
Body Positive magazine / SIDAahora
19 Fulton St, Ste. 308B, New York, NY 10038
212-566-7333 HelpLine: 800-566-6599 Mon-Fri 10-6 pm EST
Organization primarily dedicated to support for PLWHAs, including groups and referrals; includes a link to The Body website for
back issues of Body Positive magazine and SIDAahora; publishes an English/Spanish HIV/AIDS resource directory for the greater New York area. Call the HelpLine for referrals
(mental health, drug treatment, testing sites), questions about transmission, safer sex, and emotional support. The staff at Body Positive will also respond to letters.
British Columbia Persons with AIDS Society
Living + BCPWA.org
1107 Seymour St., Vancouver, BC, V6B 5S8, Canada
604-681-2122 Email: info@bcpwa.org
Site includes low-literacy pamphlets on HIV/AIDS treatment-related issues that you can order or download as PDF files, policy
and advocacy position papers, Living Positive manual, available by calling, writing or sending an email, and bimonthly
magazine, Living +, online and by subscription.
The British HIV Association
bhiva.org
Extensive site of medical association that publishes HIV, hepatitis B/HIV coinfection, hepatitis C/HIV coinfection, and pregnancy
treatment guidelines, sometimes at odds with the U.S. guidelines.
Canadian AIDS Treatment Information Exchange (CATIE)
catie.ca
555-505 Richmond St. W, Box 1104, Toronto, ON, M5V 3B1, Canada
416-203-7122 / 800-263-1638 (Canada only)
Loads of treatment information in French & English, including news bulletins, TreatmentUpdate,
CATIE's treatment newsletter, lots of other useful publications, and HIV-related clinical trials enrolling in Canada. Send information
requests to librarians using an online form or call with questions.
Canadian HIV Trials Network (CTN)
www.hivnet.ubc.ca
620 B 1081 Burrard St., Vancouver, BC, V6Z 1Y6, Canada
604-806-8327 (7:30 am - 4:30 pm PST) Email: ctn@hivnet.ubc.ca
Site of the federally funded, non-profit, national organization created to facilitate HIV/AIDS clinical trial activity in Canada. Includes a database of CTN
and non-CTN clinical trials enrolling in Canada as well as the results of past CTN trials.
The Canadian Women's Health Network
cwhn.ca
(English) / rcsf.ca (French)
419 Graham Ave., Ste. 203, Winnipeg, MB, R3C 0M3, Canada
204-942-5500 / Toll Free: 888-818-9172
TTY: 866-694-6367 / In Winnipeg: 204-942-2806 Email:cwhn@cwhn.ca
A comprehensive website about women’s health issues, not HIV-specific; includes opportunity to subscribe to monthly electronic
newsletter; PDF versions of Network newsletter; database of resources in Canada; lots of links to publications and
information.
The Center for AIDS Hope and Remembrance Project * Centers for Disease Control and Prevention (CDC) *
cdcnpin.org Centers for Disease Control and Prevention * Clinical Care Options
clinicaloptions.com ClinicalTrials.gov
clinicaltrials.gov Community Programs for Clinical Research on AIDS (CPCRA) Community Research Initiative of New England (CRI)
crine.org Critical Path AIDS Project
critpath.org Direct Access Alternative Information Resources (DAAIR)
daair.org e-medicine
emedicine.com European AIDS Treatment Group (EATG) *
eatg.org Food and Drug Administration (FDA) HIV and AIDS Page Gay Men's Health Crisis (GMHC) *
gmhc.org Henry J. Kaiser Family Foundation
kff.org/hivaids The Hepatitis C Support Project*
hcvadvocate.org Hepatitis Foundation International (HFI) Hepatitis Resource Network
h-r-n.org HighWire
highwire.stanford.edu/lists/freeart.dtl HIV & Hepatitis Education Prison Project
hivcorrections.org HIV i-Base *
www.i-base.org.uk HIV Drug Interactions
www.hiv-druginteractions.org HIV Pharmacology.com
www.hivpharmacology.com HIVandHepatitis.com
hivandhepatitis.com HIV InSite
hivinsite.ucsf.edu HIV Medication Guide *
hivmedicationguide.com HIVresistanceWeb
hivresistanceweb.com Infectious Diseases Society of America (IDSA) International Association of Physicians in AIDS Care (IAPAC) International AIDS Society & USA
iasusa.org International Council of AIDS Service Organizations (ICASO)
icaso.org Johns Hopkins AIDS Service
hopkins-aids.edu Latino Organization for Liver Awareness (LOLA) *
lola-national.org Major Drug Database
geocities.com/pchang_99/drugdatabase.html Management of Hepatitis C: 2002; Consensus Development Conference Statement
consensus.nih.gov/cons/116/116cdc_intro.htm Medscape
www.medscape.com/hiv-aidshome Merck Manual
merck.com/mrkshared/mmanual/home.jsp National AIDS Treatment Advocacy Project (NATAP) *
natap.org National Association of People with AIDS (NAPWA)
napwa.org National Center for Complementary and Alternative Medicine * National Foundation for the Treatment of Painn
paincare.org National Hepatitis C Prison Coalition *
hcvinprison.org National Institute of Allergy and Infectious Diseases (NIAID) * National Institutes of Health Office of Dietary Supplements
ods.od.nih.gov National Library of Medicine Gateway
gateway.nlm.nih.gov National Guideline Clearinghouse
guideline.gov National Minority AIDS Council (NMAC) *
nmac.org National Native American AIDS Prevention Center (NNAAPC)
nnaapc.org National Sexually Transmitted Diseases Hotline The National Women's Health Information Center *
4woman.gov The Neuropathy Association
neuropathy.org New England Journal of Medicine
nejm.org New Jersey Women and AIDS Network (NJWAN)
njwan.org New Mexico AIDS InfoNet *
aidsinfonet.org North American Syringe Exchange Network (NASEN)
nasen.org Office of AIDS Research (OAR) *
nih.gov/od/oar Office of Minority Health Resource Center
omhrc.gov On-line Dictionary
hyperdictionary.com On-line Medical Dictionary
cancerweb.ncl.ac.uk/omd People with AIDS Coalition Colorado (PWACC) * Pharmaceutical Research and Manufacturers of America (PhRMA) Philadelphia FIGHT
fight.org Physicians' Research Network
prn.org POZ
* POZ en Español / ComboCards
poz.com Program for Wellness Restoration (PoWeR) *
powerusa.org Project Inform *
projectinform.org San Francisco AIDS Foundation *
sfaf.org Seattle Treatment Education Project (STEP) The Sensible Guide to Using Complementary Therapies for Optimum Health
www3.sympatico.ca/devan.nambiar/content.htm Test Positive Aware Network (TPAN) *
tpan.com Treatment Action Group (TAG) *
TAGline Viral Load Equivalents
hepatitis-central.com/hcv/hepatitis/loadchart.html Visionary Health Concepts *
freehivinfo.com Voices of Positive Women
vopw.org The Well Project
thewellproject.org Women Alive
Women Alive newsletter
women-alive.org Women and HIV
www.niaid.nih.gov/factsheets/womenhiv.htm Women's Interagency HIV Study (WIHS)
lawihs.com WORLD (Women Organized to Respond to Life Threatening Disease) Wyoming: Positives for Positives
pos4pos.org 20040401 Copyright © 2004 - AIDS Community Research Initiative of America. Reproduction of this article (other than one copy for personal reference) must be cleared through the Editor, ACRIA Update, 230 West 38th Street, 17th Floor, New York, NY 10018; (212) 924-3934; Fax (212) 924-3936 . AEGiS is a 501(c)3, not-for-profit, tax-exempt, educational corporation. AEGiS is made possible through unrestricted funding from Boehringer Ingelheim, Bridgestone/Firestone Charitable Trust, Bristol-Myers Squibb Company, Elton John AIDS Foundation, Gill Foundation, the National Library of Medicine, Quest Diagnostics, Roche and Trimeris, and donations from users like you. AEGiS presents published material, reprinted with permission and neither endorses nor opposes any material. All information contained on this website, including information relating to health conditions, products, and treatments, is for informational purposes only. It is often presented in summary or aggregate form. It is not meant to be a substitute for the advice provided by your own physician or other medical professionals. Always discuss treatment options with a doctor who specializes in treating HIV. Copyright ©1980, 2004. ÆGIS. All materials appearing on ÆGiS are protected by copyright as a collective work or compilation under U.S. copyright and other laws and are the property of ÆGIS, or the party credited as the provider of the content.
Research Initiative / Treatment Action! (RITA!)
PO Box 66306, Houston, TX 77266-6306
713-527-8219 / Toll Free: 888-341-1788
centerforaids.org
Treatment information and advocacy site that includes their treatment newsletter, RITA!, online (archived issues date back to 1999); it can be ordered by filling out
an online order form or calling; clear, downloadable facts sheets including one about each available antiretroviral; and the opportunity to subscribe to a
weekly treatment and research email newsletter.
National Prevention Information Network (NPIN)
National STD and AIDS Hotline (24 hours a day):
800-342-AIDS (800-342-2437) / 800-243-7889 TTY /
800-344-7432 Spanish
NPIN, the prevention arm of the CDC, includes: statistics; frequently asked questions; slide sets; many publications that are
available to download and to order; access to Morbidity and Mortality Weekly Reports (MMWR) dating back to 1991; and the
opportunity to receive information through email from a variety of CDC HIV/AIDS mailing lists. People at the hotline answer prevention questions about
STDs, make referrals to local health departments, and send out information that may be found on CDCNPIN website.
National Center for Infectious Diseases – Viral Hepatitis
Voice mail line: 888-4HEPCDC (888-443-7232) 24 Hours a Day
www.cdc.gov/ncidod/diseases/hepatitis/spotlights/c_strategy.htm
Basic information about hepatitis A, B, C, D & E; statistics; fact sheets; slide sets; little coinfection information;
the National Hepatitis C Prevention Strategy (2001) in PDF and HTML; vaccination information available in many languages; most material is prevention-based, since the CDC is not a treatment agency.
Detailed information about HIV, hepatitis B, hepatitis C, and more; medical and research news, review articles, conference coverage; intended
for healthcare providers; might be heavy going for some people with little background; registration required to access most of the site.
Searchable database of clinical trials for various diseases, including HIV, that are sponsored by the National Institutes of Health, other Federal agencies, and the pharmaceutical industry; information about
the clinical trial process.
8757 Georgia Ave., Ste. 1200, Silver Spring, MD 20910
301-628-3000
www.cpcra.org
The CPCRA is a clinical trials program that conducts research through a national network of community-based sites; website
includes results of completed CPCRA studies; CPCRA is currently enrolling patients for the SMART study, a large international study comparing two HIV
treatment strategies - one group starts antiretroviral therapy only when their CD4 counts reach 250 or less, and the other will start or stay on therapy no
matter what their CD4 counts (www.smart-trial.org).
23 Miner St., Boston, MA 02215-3318
617-778-5454 / 888-253-2712
Site includes a terrific, full-color chart of antiretrovirals, including a printable PDF version - great if you have access
to a color printer; information about Massachusetts' HDAP (HIV Drug Assistance Program) and other drug access programs; descriptions of CRI's clinical trials
enrolling. Call for information about clinical trials or Massachusetts' state ADAP (HDAP) or to talk to the education and outreach staff. Written
requests for information will be fulfilled with a packet of information and/or a referral to another organization or research agency; CRI's work is
exclusively in Massachusetts.
2062 Lombard St., Philadelphia, PA 19146
215-545-2212
Site devoted to advocacy and education; includes many resources in the Philadelphia area. Call or write for information and referrals.
Department of Veterans Affairs & National Hepatitis C Program
hepatitis.va.gov
Useful, practical information about hepatitis A, B, and C as well as links to more technical materials.
118 Park Ave., Newark NJ 07104
973-497-2333 Email: info@daair.org
Non-profit buyer's club (operations currently suspended); the site is no longer being updated, but includes much historical information
on alternative therapies; the HIV Treatment Info Pages still contain good backgrounders: detailed Treatment Information sheets on alternative
therapies such as DHEA, glutathione, glycyrrhizin, NAC, and silymarin (milk thistle); articles on Evaluating Therapies, Lipodystrophy, Food Safety, Neuropathy, and other topics; and an
extensive section on countering toxicities of antiretrovirals. As with most information on alternative therapies, much of what is presented is unproven
speculation, but the site remains a good starting place for people making decisions about such treatments.
Comprehensive medical site with relatively detailed information about many diseases including HIV and viral hepatitis.
EATG e.V. Mindenerstrasse, 33 D-40277, Düsseldorf, Germany
Tel: +49 211 788 3481 Email: Office@eatg.org
Site maintained by European treatment activists; features treatment news, links to articles, policy statements, opportunity to
subscribe to monthly electronic newsletter or join EATG discussion list; information available in many languages.
Richard Klein, HIV/AIDS Program Director
Office of Special Health Issues
Office of International and Constituent Relations
5600 Fishers Ln., HF-12, Rockville, MD 20857
301-827-4460 / Fax: 301-443-4555
www.fda.gov/oashi/aids/hiv.html
Site includes transcripts of Advisory Committee Meetings; FDA news releases; brand, generic, and approval dates for each antiretroviral;
a helpful FDA A-Z index; links to related sites; and the opportunity to sign up for email announcements about product approvals, significant label changes,
safety warnings, notices of upcoming public meetings, and more.
Treatment Issues
Dept. of Medical Information, 119 W. 24th St., New York, NY 10011
212-367-1456 / Hotline: 212-807-6655
AIDS service and advocacy organization. Site includes information about GMHC's many services, current and archived issues of
Treatment Issues going back to 2000, fact sheets, and educational brochures available for sale. Call hotline for
information about HIV/AIDS, testing, support, and referrals for services.
650-854-9400
Site contains reports, information, and fact sheets about national and international HIV/AIDS issues; substantial and very useful. Single
copies of the policy-related fact sheets and surveys are available by calling.
The HCV Advocate
PO Box 427037, San Francisco, CA 94142
Thorough, consistently updated information about viral hepatitis and coinfection; includes fact sheets (many in Spanish), articles,
news updates, conference coverage, links to other viral hepatitis websites, and PDF versions of The HCV Advocate
newsletter dating back to 1999. Write to request materials by mail.
504 Blick Dr., Silver Spring, MD 20904-2901
301-622-4200 / Toll-free: 800-891-0707
hepatitisfoundation.org
hepatitisresources-calif.org
www.heplink.org
Fact sheets, news updates, an online learning center, brochures and pamphlets (for sale); fact sheets are available in other languages
by calling or emailing HFI. Call for information about support groups, resource materials, and medical referrals, People seeking information about
hepatitis can also write with questions.
Information about medications in development for the treatment of hepatitis C, clinical trials for hepatitis C, and slide
presentations about hepatitis B/HIV and hepatitis C/HIV coinfection.
Extensive list of medical journals, some of which include HIV-related study results, with information on when issues become available for
free; includes links to each journal.
HEPP Report
Contains text articles and PDF versions of HEPP Report, a monthly newsletter detailing treatment issues for inmates; the January 2004 issue includes a table
of interactions between methadone and anti-HIV medications; archived issues available back to 1999. Hard copies of the newsletter aren’t currently
available, but you can call for information about HIV, viral hepatitis, and statistics.
HIV Treatment Bulletin
British site that includes thorough HIV treatment and conference reports; you can receive PDF versions of publications via
email or by ordering them online; information is available in Spanish, French, Italian, Portuguese, Greek, and Chinese.
+44 (0)151 794 5553
Detailed charts and articles about interactions between drugs/herbs and protease inhibitors and non-nucleosides (NNRTIs) as well as in
interactive database that allows you to choose drugs to check about possible interactions; includes links to full relevant journal articles; site
sponsored by the University of Liverpool.
Email: info@virology-education.com
Articles, conference reports, and information focused on pharmacokinetics and drug interactions. Free registration required.
This site does not work in Netscape.
PO Box 14288, San Francisco, CA 94114
Regularly updated website featuring HIV, hepatitis B, hepatitis C & coinfection treatment information, news reports & conference coverage, including the opportunity to submit questions to
the site's medical consultants.
Comprehensive site includes vast amounts of treatment information and news, including sections devoted to policy issues; women and children; global issues; statistics; links; and the HIV InSite
Knowledge Base, a detailed, online textbook about various aspects of HIV disease and its treatments from the University of California at San Francisco and San Francisco General Hospital.
Notis Inc., 2408 S. Shore Rd., Sudbury, ON, P3G 1M3, Canada
Searchable guide to drug interactions; dosing schedules; pamphlets/fact sheets about individual anti-HIV medications; all information is
available in English and French; some materials available in Spanish, too.
Lots of information about resistance, genotypic and phenotypic tests; links to related abstracts; much of the information is
relatively old (2002 or earlier).
HIV Medicine Association (HIVMA)
HIV E-News / HIV Quality Care News
66 Canal Center Plz., Ste. 600, Alexandria, VA 22314
703-299-0200 / 703-299-1215 Email: hivma@idsociety.org
www.idsociety.org / www.hivma.org
Website of healthcare professionals who specialize in infectious diseases; includes clinical practice guidelines for HIV and
other illnesses; click on "Journals & Publications" to get IDSA News, abstracts from recent issues of Journal of Infectious Diseases and Clinical
Infectious Diseases, and free access to complete issues over a year old. Sign up, call, or send an email to receive HIVMA's periodic E-newsletter, HIV
E-News, to keep informed of time-sensitive issues, and HIV Quality Care News, a bimonthly newsletter for in depth coverage of HIV news by mail.
Journal of IAPAC / IAPAC Monthly / Navigating HIV Resistance
33 N. LaSalle St., Ste. 1700, Chicago, Illinois 60602-2601
312-795-4930
www.iapac.org
Organization formed by physicians to educate healthcare providers about HIV/AIDS and to develop global educational and advocacy
strategies to improve the quality of care provided to all people living with HIV/AIDS. Articles from Journal of IAPAC, quarterly, peer-reviewed journal, are available for free online, as are
articles from past issues of IAPAC Monthly, the organization's monthly newsletter; monthly publication, Navigating HIV Resistance, is also available online for free; and other treatment publications are
available for sale.
Topics in HIV Medicine
415-544-9400
Professional organization providing continuing medical education programs for physicians; site contains back issues of Topics in HIV Medicine, their bimonthly
publication that features summaries of talks from IAS courses, highlights of scientific meetings, and review articles; call for copies of the publication.
Site also contains IAS guidelines, including Recommendations for the Use of HIV Resistance Testing and Recommendations for the Management of Metabolic Complications.
65 Wellesley St., Ste. 403, Toronto, ON, M4Y 1G7, Canada
416-340-2437 Email: icaso@icaso.org
Global network of non-government and community-based organizations working on international HIV/AIDS issues; position papers on topics such as access to care
and treatment, discrimination and stigma, and vaccine development; very little treatment information; be sure to check out the online slide show,
Ethical Principals, Current Guidelines and Quandaries.
The Hopkins HIV Report
Offers an up-to-date literature review; animation of the HIV life cycle; a Question of the Week; PDF versions of useful publications including
Medical Management of HIV Infection; and current and archived issues of The Hopkins HIV Report, a monthly newsletter. Materials are
geared toward healthcare providers but are a good resource for anyone familiar with the basics.
PO Box 842, Throggs Neck Station, Bronx, NY 10461
718-892-8697 / 888-367-5652 (outside NY only)
Bilingual, bicultural organization dedicated to raising awareness about liver disease through informational materials, community
outreach, referral services, support groups, and more; fact sheets in English and Spanish are available by calling LOLA; site also includes a useful section about liver donation and transplantation.
Database of sales information for major pharmaceutical companies, including those that make HIV-related drugs. Site includes information about market shares, patent expirations, sales projections,
and medical information; features information about more than 360 drugs from 33 companies (not all HIV-related).
Consensus statement from the National Institutes of Health (NIH) for the treatment of hepatitis C (available in HTML and PDF); created by
a non-governmental group of researchers, doctors, patients, and advocates; addresses HIV/HCV coinfection; easy-to-read, comprehensive document; site
includes videocasts of the three-day conference that led to the development of the consensus statement.
Allows free access if you register with a password. Site includes: articles on research and clinical treatment of HIV/AIDS; MEDLINE
(database of abstracts of HIV research articles) and DrugInfo (database of drug information); conference coverage; continuing medical education; patient
information on HIV health topics; select articles from medical journals; and an "Ask the Experts" section. Content is relatively technical, but not
overly so. Probably the best site to find out about an individual drug (search the DrugInfo database).
Comprehensive, up-to-date clinical manual used by many physicians for diagnosis and treatment of various disorders, including
HIV/AIDS; go to Table of Contents or use the search engine to find whatever it is you're looking for; the manual can be ordered online or accessed free of
charge through the website. Dense but valuable resource.
580 Broadway, Ste. 1010, New York, NY 10012
212-219-0106 / 888-26-NATAP (888-266-8287)
Treatment information, news reports, and extensive conference coverage related to HIV/AIDS, and HIV/HBV and HIV/HCV coinfection;
PDF publications can be downloaded, some in Spanish. Treatment information about coinfection is also available by phone and mail.
Positive Voice Update
1413 K St., NW, Ste. 700, Washington, DC 20005
202-898-0414 / 703-998-3144
National advocacy and education organization that hosts trainings and conferences, sponsors and promotes an annual National HIV Testing
Day (June 27th, this year), and AIDSWatch, to help U.S. Congress members understand the needs of people with HIV/AIDS. NAPWA's free, advocacy-oriented,
periodic email based newsletter, Positive Voice Update, last published in December 2003, will go back to being print-based later in 2004. NAPWA's recent publication, Your
Passport to Managed Care: A Tool for Making Managed Care Work for You, can be ordered for free in English or Spanish using a link on the
site.
NCCAM Clearinghouse, PO Box 7923, Gaithersburg, MD 20898
Toll Free Hotline: 888-644-6226 (Mon-Fri 8:30 am - 5:00 pm)
TYY/TDY: 886-464-3615
nccam.nih.gov
Part of the National Institutes of Health; not HIV-specific, although much of the information is relevant to HIV; site offers information
about complementary and alternative medicines (CAM), trial sites conducting clinical studies of these therapies; a description of the clinical
trial process; an online newsletter; and alerts about possibly dangerous interactions between CAMs and other medications. Call for information or to have
documents faxed or mailed to you. Hotline is available in English and Spanish.
Not HIV-specific. Organization dedicated to providing support for people who are suffering from stubborn pain, their families, friends, and
the physicians who treat them; offers a patient forum, advocacy programs, information, referrals, support resources, and direct medical intervention.
Coalition of organizations and individuals focused on the care and treatment of people in U.S. prisons with hepatitis C; site includes
contact information for coalition members, treatment information, and Department of Corrections HCV Treatment Guidelines by state (where available) in PDF format (some in both English and Spanish).
National Institutes of Health, Bldg. 31,
31 Center Dr., 7A50, Bethesda, MD 20892
www.niaid.nih.gov/publications/aids.htm
Governmental fact sheets about aspects of AIDS - a basic overview, prevention, vaccines, and therapies - and links to related publications (primarily CDC).
6100 Executive Blvd., Rm 3B01, Bethesda, 20892-7517/ 301-435-2920
Site contains fact sheets on vitamins and minerals; information about supplements; recall and safety notices; and the International
Bibliographic Information on Dietary Supplements database (IBIDS), which provides access to published abstracts on supplements. IBIDS also
contains a consumer section geared toward a more general audience. The office will try to find someone to answer your questions if you call or write. Direct
requests for multiple fact sheets to the National Center for Complementary and Alternative Medicine (nccam.nih.gov).
Site allows users to search many databases at the National Library of Medicine all at once, including MEDLINE/PubMed, ClinicalTrials.gov,
Meeting Abstracts, and more. Some abstracts contain links to complete articles, but most journals require payment to view the full-length article,
unless you can get to a medical library. Presentations from conferences are sometimes available only as the pre-conference abstract, but often contain
contact information to obtain the complete poster or presentation.
Database of clinical practice guidelines for many illnesses maintained by the Agency for Healthcare Research and Quality (AHRQ). HIV-related guidelines include those from the American Academy of
Pediatrics, the American Psychiatric the Association, Infectious Diseases Society of America, the National Pediatric and Family HIV Resource Center, as well
as the more familiar guidelines updated regularly on AIDSinfo (aidsinfo.nih.gov); this site is designed for healthcare providers, but contains useful info for
all.
1931 13th St., NW, Washington, DC 20009
202-483-6622
Organization dedicated to developing HIV/AIDS leadership in communities of color. Site includes links to regional and national trainings
and conferences, HIV/AIDS hotlines, policy and treatment publications; and a prison initiative, which offers a regularly updated resource list for
HIV and corrections. Call or write to get referrals to other agencies, publications, and general questions about HIV/AIDS answered.
Seasons
436 14th St., Ste. 1020, Oakland, CA 94612
510-444-2051
Site includes information on NNAAPC's technical assistance services, Native American HIV/AIDS statistics, prevention curricula and
materials developed by NNAAPC, and a resource guide to Native American AIDS service organizations and healthcare providers. Publications from a
resource guide to training materials on HIV prevention for Native Americans, one catering to you, spirited people, gay people of color. Quarterly newsletter.
800-227-8922 / 800-344-7432 (Spanish)
Answers questions about STDs and HIV, provides referrals for testing sites, case management and treatment information nationally.
Department of Health and Human Services
200 Independence Ave. SW, Rm 730B, Washington DC 20201
English & Spanish information and referral helpline (not HIV-specific):
202-690-7650 / 800-994-WOMAN (800-994-9662)
Mon-Fri 9 am-6 pm EST / TYY: 888-220-5446
Information about women's health and HIV in English and Spanish put together by the U.S. Department of Health and Human Services
(DHHS). Site includes a Frequently Asked Questions section about HIV, information on DHHS activities and events, women's health statistics,
and related news. There's also an audio section where DHHS scientists talk about early days of HIV research. Call or write for information.
212-692-0662
Includes basic information about peripheral neuropathy, a list of physicians who deal with neuropathy, and support groups. Free registration required. The staff will answer questions about neuropathy
over the phone or send materials to people.
Allows access to articles older than six months for free if you register with a password. This journal is a primary resource that
features review articles and recent medical studies/findings, including the results of HIV/AIDS clinical trials.
7 Spring St., New Brunswick, NJ 08901
732-846-4462 / Sister Connect Warmline: 800-747-1108
Organization offers education programs for HIV-positive and negative women, covering topics such as pregnancy and HIV, safer sex, treatment
adherence, and sexuality. Maintains a nationwide database of obstetrical services, HIV testing sites, organizations for young women, and family
planning agencies to provide referrals to Warmline callers; some publications available for a fee by ordering online or calling; will fulfill information
requests by mail to the best of their abilities.
User-friendly, regularly updated, one page fact sheets in English and Spanish. Topics include: basic HIV and AIDS information, individual
HIV medications, opportunistic infections, lab tests, side effects, complementary therapies, and many more.
Point Defiance AIDS Project
535 Dock St., Ste. 112, Tacoma, WA 98402
253-272-4857
Links to needle exchange programs around the country as well as harm reduction sites and information. Call or write to get information about
needle exchange programs in your area.
National Institutes of Health (NIH)
9000 Rockville Pike, Bethesda, MD 20892
Site includes the OAR's annual plan and budget for all NIH AIDS-related research; detailed descriptions of all HIV/AIDS research being
conducted throughout the NIH; a glossary of acronyms; archived reports of OAR-sponsored meetings; and transcripts in English and Spanish of the OAR's "Meet the Experts" sessions.
800-444-6472
Site maintained by the U.S. Department of Health and Human Services; contains many publications on various illnesses, including HIV/AIDS
(available online and in print); a list of upcoming conferences; many statistical reports; and a searchable database of health materials (click on
"Search" on the main page); call to speak to information specialist who will do grant searches for organizations, send fact sheets, make referrals,
and give information about cultural competency training and outreach services.
Includes a medical dictionary, an English dictionary, a thesaurus, a computer dictionary, even a dream dictionary. And no ads!
A dictionary of medical terms; words can be searched by subject area or as single terms; the Frequently Asked Questions section is helpful.
Resolute: Dedicated to Surviving HIV/AIDS
PO Box 300339, Denver, CO 80203
303-329-9379
pwacoalitioncolorado.org
Call or write to receive copies of the newsletter, which covers HIV news and lists clinical trials open for enrollment in Colorado; site
allows people to ask treatment questions; PWACC will also answer requests for information by regular mail.
New HIV Medicines in Development
phrma.org/newmedicines
Lists drugs in development for HIV/AIDS and other diseases, including manufacturer information and where the drugs are in the research process; industry news and press releases; link to information on
patient assistance programs (www.helpingpatients.org).
1233 Locust St., #500, Philadelphia, PA 19107
AIDS Library: 215-985-4851
Community research and education organization. Houses AIDS Library; Critical Path AIDS Project (online resource directory); Project TEACH
(Treatment Education Activists Combating HIV) peer training program; and Y-HEP (Youth Health Empowerment Project) peer-to-peer prevention program.
Call or write for information. Although focused on the Philadelphia area, they will collect resources and send them to people around the country, as well
as direct them to services in their local area.
The PRN Notebook
20 W. 22nd St., 11th fl., New York, NY 10010-5804
Fax: 212-924-0759
News and review articles focusing on the latest issues in HIV care; includes articles on laboratory tests, HIV/HCV coinfection, HIV
treatment options, drug resistance, and lipodystrophy. Intended for healthcare providers but a good resource for anyone already familiar with the
basics. People requesting copies of The PRN Notebook without Internet access can fax or write to PRN with a mailing address and a description of their involvement with HIV (healthcare
provider or PWA, for example).
1 Little W. 12th St., 6th fl., New York, NY 10014
800-9-read-poz (800-732-3769) for single subscriptions.
866-465-2349 x219 or x246 for bulk subscriptions and ComboCards.
Bimonthly glossy magazine published ten times a year dedicated to HIV issues; available in both English and Spanish versions. Site offers online version of the magazine and an archive of past issues
back to 1994. Free copies available to people living with HIV by subscribing online. Site has a section on labwork (Labwork Made Easy). The parent company of POZ,
Smart + Strong, also makes ComboCards, palm cards with information on scheduling, dosing, side effects and drug interactions of specific HIV drug combinations. They are available for free (www.combocards.com).
Power Health Review
Information for patients and physicians about an approach to AIDS wasting management, prevention, and reversal through nutrition, supplementation, resistance weight training, anabolic hormones, and
motivational techniques; online discussion group about lipodystrophy; e-based newsletter, a speakers bureau; a review of HIV health and quality of life
information, a lipodystrophy list serve; useful links including many related to lipodystrophy, AIDS wasting, and facial reconstruction; and a section on wasting/lipodystrophy in Spanish.
PI Perspective / Wise Words
National treatment hotline (English & Spanish):
800-822-7422 Mon-Fri 9-5 pm, Sat 10-4 EST
Advocacy, policy, and education organization. Site includes lots of HIV treatment information: newsletters (PI Perspective and Wise Words);
fact sheets and articles by topic; slide presentations from several conferences; a multimedia library that can be accessed online; and
literature specific to women, available in both English and Spanish. Call the hotline for treatment questions on opportunistic infections, talking with your
doctor, lab work, side effects, support from other PWAs, and to request fact sheets. Referrals to other services available.
BETA (Bulletin of Experimental Treatments for AIDS)
995 Market St., #200, San Francisco, CA 94103
415-487-3000 / For subscriptions call: 415-487-8060
AIDS service and advocacy organization. BETA, treatment magazine published three or four times a year, is available online in HTML and PDF versions; for a free subscription,
email or call; lots of treatment articles organized by topic, from AIDS 101 to Osteonecrosis; extensive glossary of HIV-related terms. Call for literature, to ask
questions, to find out about local services, Latino & African American support groups, needle exchange, volunteer opportunities, and more.
Lifelong AIDS Alliance *
STEP Perspective / STEP Ezine
1002 E. Seneca St., Seattle, WA 98122-4214
206-957-1659 / Hotline: 888-399-7837 Email: step@llaa.org
thebody.com/step
lifelongaidsalliance.org/prevention/step.html
STEP Perspective and STEP Ezine are both available at thebody.com/step. STEP Ezine offers short, up-to-the-minute articles, and STEP
Perspective provides more in-depth coverage of treatment topics. Call the hotline for HIV/AIDS treatment information, referrals, and questions
about medication and treatment adherence.
Site organized by one individual (Devan); not all HIV-specific; information on Ayurvedic medicine, acupressure, aromatherapy,
traditional Chinese medicine, herbal remedies, Yoga, meditation, and lots, lots more. Not the most organized of sites, but there's plenty of
information about complementary therapies here.
Positively Aware
5537 N. Broadway St., Chicago, IL 60640-1405
773-989-9400
Site includes TPAN publications (Positively Aware is particularly useful, especially the annual Drug Guide), available online or through subscription; email addresses for a
pharmacist and a doctor who answer questions about medications, treatment, and HIV disease; information about events in the Chicago area; and more.
Call or write to request publications (Positively Aware is available in English and Spanish).
611 Broadway, Ste. 612, New York, NY 10012
212-253-7922
aidsinfonyc.org/tag
Treatment updates and policy analyses concerning various aspects of the epidemic, including research advocacy, treatment strategies, and
HCV/HIV coinfection Subscribe by email to the monthly newsletter, TAGline, which includes articles in Spanish. Issues of TAGline going back
to 1996 are available in PDF format. Call or write with research and advocacy questions.
Useful chart for converting logs to actual numbers - useful for both HIV and HCV viral loads (For example, a viral load of log 5 = 100,000
copies); site includes lots of other clear, practical information about viral hepatitis, too.
800-491-2181
Free booklets for individuals and organizations written for people with HIV and/or HCV, available by PDF download or through regular mail;
topics include Easy-to-Understand Info About HIV Resistance, The Long and the Short of It: Side Effects and the Search for HIV Treatment that
Fits the Individual, and Dosing Matters: Getting the Most out of Your HIV Regimen. Most materials are also available in Spanish. Order online or call.
For Your Information (FYI)
66 Isabella St., Ste. 105, Toronto, ON, M4Y 1N3, Canada
416-324-8703 / Toll-free: 800-263-0961 Email: voices@vopw.org
VOICES' bi-monthly newsletter, For Your Information, is available online or mailed to you free by subscription; although not focused on treatment, issues that affect
treatment decisions are well-covered, such as stigma, isolation, youth, harm reduction, and pregnancy; site includes an extensive database of service
organizations and resources for HIV-positive women and their service providers in Ontario.
700 Glenwood Ave., Ste. 100, Raleigh, NC 27605
434-293-2955
Email address and password required to access full site; site is aimed for HIV-positive women; chock full of news and information about
various HIV issues - individual medications, treatment strategies, opportunistic infections, exercise, legal topics, pregnancy, and much
more. Some articles are accompanied by summary slides; members can join discussion boards and receive a bi-monthly email newsletter. Hard copies of fact
sheets will be sent upon request. They are producing a CD-ROM of the website, to be updated periodically.
1566 S. Burnside Ave., Los Angeles, CA 90019
323-965-1564 / Hotline: 800-554-4876
Treatment information, fact sheets, supportive services, and lots of links. Email the staff medical advisor directly with treatment
questions; the staff will also forward medical questions to the medical advisor. Hotline provides treatment information, emotional support,
newsletter requests, and nationwide referrals; support group for Spanish speaking HIV-positive women at the agency.
NIAID Office of Community and Public Liaison, Bldg. 31,
Rm. 7A-50, 31 Center Dr., MSC 2520, Bethesda, MD 20892-2520
Information from the U.S. Department of Health and Human Services that provides a concise overview of HIV/AIDS in women.
Description and updates about this large prospective cohort study designed to determine the natural history of HIV in women; opportunity to
ask questions of the study's primary investigator online; limited treatment information.
WORLD
414 13th St., 2nd fl., Oakland, CA 94612
510-986-0340
womenhiv.org
Treatment information particularly about pregnancy, advocacy, news, and HIV University; newsletter. Newsletter, World, is by and for HIV-positive women
and their loved ones; site is currently over a year out of date, but should be up to date again soon. Call or write with questions and requests for information.
Positives for Positives
1711 Carey Ave., Cheyenne, WY 82001
307-635-0566 / 800-492-2203 Email: info@pos4pos.org
Archived copies of newsletter available online; call, write or complete online order form to receive free individual or bulk copies; email
general questions about HIV/AIDS; site includes information about advocacy actions.
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