(ATN) PML: Updated Report Available

(ATN) PML: Updated Report Available

AIDS TREATMENT NEWS No. 115 - November 27, 1990
John S. James

A severe opportunistic viral infection of the brain called progressive multifocal leukoencephalopathy (PML) has long been considered by the medical establishment to be untreatable. But over a year ago Los Angeles activists Lisa and Peter Brosnan published a compilation of literature discussing experimental treatments for PML (see AIDS TREATMENT NEWS #79, #88 and #100), and they have recently completed an expanded, updated edition. The new report includes case histories collected by the authors, the results of an informal PML survey which they conducted earlier this year, a discussion of the known potential treatments, and several articles reprinted from recent medical literature.

Requests for the report can be sent to 3031 Angus Street, Los Angeles, CA 90039. Urgent requests can be called in to 213/666-0751. The cost of copying and mailing the report is $25 for first class delivery, or $30 for express mail. Persons with AIDS are offered the report for $15, for either kind of mailing; it will be sent free if necessary.

Although no single drug has been proven to treat PML, no one facing this diagnosis should be told that there is nothing at all to try. Acyclovir, cytarabine, dexamethasone, heparin, interferon, NAC, and vidarabine have all been tried against PML with varying degrees of success. Peter and Lisa's first report undoubtedly saved lives over the past year, and the new edition promises to build on that accomplishment.

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