Sunday Times (Johannesburg) - May 28, 2006
My decision to speak out about the cause of our children's death was difficult and personal. I felt I had a responsibility as a leader of my people to speak out against the stigma and silence which are the main causes of the prolific spread of this deadly disease. I knew that I was taking a risk due to the sensitivities of such matters in African culture. But I have never regretted it once. I hope my decision has made a small difference.
I did things that I would not normally countenance. For instance, I allowed myself to be filmed walking near my children's graves, for a British television station. I simply thought if the image helped, I should do so.
Throughout my long exposure to HIV/Aids through my personal and professional interests, my constituency and my closest family, I have never had the slightest doubt, that, together, we can stop the disease.
I have heard, and indeed experienced, many heartbreaking accounts of the devastation that this preventable plague has brought on communities. But I have also heard many stories of people and entire countries that, with qualified medical help, have successfully addressed the disease.
The HIV/Aids pandemic is the most serious social-economic crisis South Africans have ever faced, apartheid included. It can only be tackled with genuine commitment and political will. From the highest to the lowest levels of government and civil society, the pandemic can only be defeated against a backdrop of hope.
A successful long-term strategy to defeat it can only work as a partnership between the infected/affected on the one hand, and private/public sectors and international organisations on the other. Unnecessary confusion regarding the cause and true danger of the disease must be rooted out once and for all.
Another key is to empower the vulnerable. In addition to HIV-positive pregnant women, a comprehensive roll-out programme must be extended to cover suckling babies, rape victims, prisoners and everyone diagnosed with HIV.
I, personally, will never cease to campaign against the myth of "virgin cure", for education and empowerment of women, for improvement of court procedures for rape victims, and for assistance to orphans and child-headed households.
As for Irene and me, life goes on, somehow. The relentless clock will not stop for anyone. Irene and I look after Mandisi's son, and he brings much joy to our lives.
As for my dear children, I will never forget their doughty fight and their stubborn determination to live and, yes, smile in the most difficult of times. The human spirit is really quite glorious - even in the shadow of death.
060528
ST060516
Copyright © 2006 - The Sunday Times. Reproduction of this article (other than one copy for personal reference) must be cleared through the Sunday Times Permissions Desk.
AEGiS is a 501(c)3, not-for-profit, tax-exempt, educational corporation. AEGiS is made possible through unrestricted grants from Boehringer Ingelheim, Bridgestone/Firestone Charitable Trust, Bristol-Myers Squibb Company, Elton John AIDS Foundation, the National Library of Medicine, Roche and Trimeris, and donations from users like you. Always watch for outdated information. This article first appeared in 2006. This material is designed to support, not replace, the relationship that exists between you and your doctor.
AEGiS presents published material, reprinted with permission and neither endorses nor opposes any material. All information contained on this website, including information relating to health conditions, products, and treatments, is for informational purposes only. It is often presented in summary or aggregate form. It is not meant to be a substitute for the advice provided by your own physician or other medical professionals. Always discuss treatment options with a doctor who specializes in treating HIV.
Copyright ©1980, 2006. AEGiS. All materials appearing on AEGiS are protected by copyright as a collective work or compilation under U.S. copyright and other laws and are the property of AEGiS, or the party credited as the provider of the content. .