HEALTH: Activists to Push for Human Rights of HIV/AIDS Patients Inter Press Service
click here to return to Inter Press Service main menu
DonateNow


HEALTH: Activists to Push for Human Rights of HIV/AIDS Patients

Inter Press Service - July 9, 2000
Marwaan Macan-Markar


MEXICO CITY, Jul 9 (IPS World Desk) - AIDS activists get another opportunity to champion the cause of human rights for those living with the killer disease at this week's 13th International AIDS Conference, in Durban, South Africa. Of particular importance to these advocates is the need to secure greater community support from all countries for the rights of adults and children afflicted with the killer disease.

And to achieve such guarantees, the conference organisers have schedu led a special session on the subject, one in a series of "community program mes" that will run concurrent with the scientific sessions at the international gathering, which is expected to draw close to 12,000 people from across the world. According to Peter Busse, the Community Programme co-chairperson, the community programmes will seek to "integrate and involve the infected and affected community perspectives and voices into all aspects of the conference programme."

The special community programme on human rights for HIV/AIDS patients , in fact, has already identified five Latin American countries, including Argentina, Brazil and Venezuela, to showcase their achievements - studies done locally to identify human rights issues that matter to patients with HIV/AIDS (h uman immunodeficiency virus/ acquired immune deficiency syndrome).

Such studies are a "qualified success," say the organisers of the AIDS conference, since they offer ample information to those who are not familiar with a particular country's situation, and they identify human rights issues related to HIV/AIDS that need to be addressed.

Some legal experts and AIDS activists, however, opted for other avenu es to achieve their objective. Two days before the conference began on Sunday, the Canadian HIV/AIDS Legal Network and the South African AIDS Law Projec t teemed up with the United Nations department for AIDS (UNAIDS) to launch a pre-conference meeting in Durban on the legal, ethical and human rights aspects of the pandemic.

"In the area of HIV/AIDS, there are several areas of rights that coul d potentially be used to mobilise people, groups and communities," observed Cathi Albertyn, in a discussion paper written for this pre-conference event , "Putting Third First - Critical Legal Issues and HIV/AIDS."

In her view, a rights campaign requires one to frame the issues carefully, drawing on broad-based support, arange of legal and non-legal strate gies and sufficient resources.

And that calls for using rights that are already entrenched in the law. "Where rights are entrenched in national laws, they can serve both as cataly st for change and a defensive strategy against constraints that states or it s citizens seek to impose on persons or groups," added Albertyn, of the Centre for Applied Legal Studies at the Univervsity of Witwatersrand, Johannesburg, Sout h Africa. Furthermore, she referred to the range of "first generation rights" - like equality, dignity, privacy and security of the person - that could be drawn upon to secure the rights of HIV/AIDS patients.

According to the Canadian legal body, people afflicted with HIV/AIDS have become victims of two epidemics - the disease and the "one of stigma and discrimination." As a result, such discrimination affects the lives of both the victims of the disease and their lovers, families and caregivers.

This epidemic of stigma has consequences, it pointed out, since infected people have been prevented from seeking or obtaining the health care and social support they require, adults with the disease have lost their jobs or have been denied employment, and afflicted children have been denied care. In Canada, for instance, "cases of discrimination have been documented in many areas, including housing, employment, prisons, access to health care and access to public services," it revealed.

The need to stem such pervasive discrimination has become more urgent in light of the bleak picture painted by UNAIDS in its "Report on the Global H IV/AIDS Epidemic," which was released in late June.

"The probability of dying of AIDS is systematically higher than the p revalence rates indicate," the report declared of the disease that has, to date, been responsible for 18.8 million deaths, 3.8 million of them children.

In sub-Saharan Africa, where the most severe epidemic is to be found, close to 24.5 million adults and children are now living with HIV, and the proportion of 15- to 49-year-olds infected with the virus is still increasing, the report added.

What is more, it noted, in countries such as Cameroon, Ghana and South Africa - which now has 4.2 million people living with HIV/AIDS, "the highest number in the world" - the adult prevalence rate "has shot up by more than half in the past two years."

Regards the impact of the disease among African women, it said this: "HIV prevalence rates in young women aged 15-24 are higher - typically two or three times higher - than those of young men the same age."

Speaking soon after this report's release, Peter Piot, the executive director of UNAIDS, expressed his disappointment at the global response to suc h a dismal reality, describing it as "just a fraction of what it could be."

"We need to respond to this crisis on a massively different scale from what has been done so far," he said.

Securing the rights of HIV/AIDS patients, in fact, is one area that UNAIDS still deems wanting, despite the "International Guidelines on HIV/AID S and Human Rights" it has published in tandem with the UN High Commission for Human Rights (UNHCHR).

This publication, which focuses on 12 aspects of HIV/AIDS and human rights, specifically calls on governments and communities to "confront the is sues with a sense of urgency."

It emphasises, furthermore, that the fulfilment of a state's obligation to non-discrimination, health, information, education, social welfare and public participation is "crucial not only to ensure human care and support for those infected and affected by HIV/AIDS, (but) it is also vital in the fight to reduce people's vulnerability to infection".

According to UNAIDS, the need to push through this message - that hum an rights and public health are inextricably linked - will be on the agenda of its team of top officials during the Durban gathering. (END/IPS/HE/mmm/da/00).
000709
IP000703


Copyright © 2000 - Inter Press Service. All rights reserved. Reproduced with permission. Reproduction of this article (other than one copy for personal reference) must be cleared through the Inter Press Service, IPS-ONLINE, World Desk via Panisperna 207 00184 Rome, Italy. Email: info@ips.org  http://www.ips.org

AEGiS is a 501(c)3, not-for-profit, tax-exempt, educational corporation. AEGiS is made possible through unrestricted funding from Broadway Cares/Equity Fights AIDS, Elton John AIDS Foundation, the National Library of Medicine, Pacific Life Foundation and donations from users like you.

Always watch for outdated information. This article first appeared in 2000. This material is designed to support, not replace, the relationship that exists between you and your doctor.

AEGiS presents published material, reprinted with permission and neither endorses nor opposes any material. All information contained on this website, including information relating to health conditions, products, and treatments, is for informational purposes only. It is often presented in summary or aggregate form. It is not meant to be a substitute for the advice provided by your own physician or other medical professionals. Always discuss treatment options with a doctor who specializes in treating HIV.

Copyright ©1980, 2000. AEGiS. All materials appearing on AEGiS are protected by copyright as a collective work or compilation under U.S. copyright and other laws and are the property of AEGiS, or the party credited as the provider of the content. .