Dallas, police surveillance and the NHF. National Hemophilia Foundation. Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003. 800-458-5231 ext. 5023.

Important note: Information in this article was accurate in 1995. The state of the art may have changed since the publication date.

Dallas, police surveillance and the NHF. National Hemophilia Foundation. Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003. 800-458-5231 ext. 5023.

Common Factor. 1995 Apr;(no 10):3, 31-2. Unique Identifier : AIDSLINE AIDS/95700362
Dubin CS

Abstract: In 1995, the National Hemophilia Foundation (NHF) held its annual meeting in Dallas amid ongoing controversies over AIDS and viral contamination of the U.S. blood supply. Principal topics were the class action lawsuit, delivering justice to those infected with HIV, and the legislative campaign for government compensation. The Dallas meeting was marked by controversy: the NHF failed to endorse the class action suit against blood supply producers; the NHF Board elections produced a leadership dominated by people without hemophilia and ignored persons who represented change; and a large number of police were present, authorized by the NHF, and seen by many to be a result of the NHF members' concern about potentially unruly demonstrations or possibly as a way of squashing dissent and diversity. The NHF has also discouraged those infected with HIV from taking legal action, and they have openly obstructed the pursuit of legal justice by disseminating misinformation regarding individuals' legal rights. It is felt that the NHF cannot be characterized as a consumer advocacy group and that the Dallas meeting served only to reinforce the view of NHF's role in obstructing the real empowerment of the hemophiliac community.

Keywords: Acquired Immunodeficiency Syndrome/*COMPLICATIONS/TRANSMISSION Blood-Borne Pathogens Hemophilia/*COMPLICATIONS Human HIV/ISOLATION & PURIF Lobbying Texas NEWSLETTER ARTICLE

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