An open letter to the hemophilia community from the Community Advocacy Working Group. Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003. 800-458-5231 ext. 5023.

Important note: Information in this article was accurate in 1995. The state of the art may have changed since the publication date.

An open letter to the hemophilia community from the Community Advocacy Working Group. Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003. 800-458-5231 ext. 5023.

Common Factor. 1995 Apr;(no 10):24-6. Unique Identifier : AIDSLINE AIDS/95700377
Dubin C; Hamilton J; Kuhn D; Niederman R; Ray C; Ray L; Valdez D; Wadleigh J

Abstract: The Community Advocacy Working Group (CAWG) writes an open letter to the hemophiliac community, outlining the legislative efforts on behalf of the community since 1988, the current legislative campaign of the National Hemophilia Foundation (NHF), and the creation of CAWG. CAWG was created to resolve differences between the NHF platform and the Community of Ten Thousand (COTT) platform to avoid contradictory efforts in Congress. The NHF has betrayed CAWG, and this betrayal has damaged their legislative efforts. CAWG suggests that the NHF has a hidden agenda: they want to give members of the community an incentive to oppose the class action lawsuit and any other AIDS litigation, a position held since 1985 when they began to help the fractionators in court. CAWG states that the clear loser of these cross-purpose platforms and hidden agendas would be families with hemophilia who are enduring HIV disease. CAWG requests that only materials produced or endorsed by CAWG be used by community members in their congressional visits.

Keywords: Drug Contamination Family *Hemophilia/COMPLICATIONS Human HIV Infections/*COMPLICATIONS/TRANSMISSION Lobbying *Patient Advocacy Politics Public Assistance/LEGISLATION & JURISPRUD NEWSLETTER ARTICLE

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M95B0889

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