MANN: empowered and oppressed? Men's Advocacy Network of the National Hemophilia Foundation. Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003. 800-458-5231 ext. 5023.

Important note: Information in this article was accurate in 1995. The state of the art may have changed since the publication date.

MANN: empowered and oppressed? Men's Advocacy Network of the National Hemophilia Foundation. Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003. 800-458-5231 ext. 5023.

Common Factor. 1995 Apr;(no 10):28-9. Unique Identifier : AIDSLINE AIDS/95700379
Kuhn D

Abstract: The author describes the purpose and the development of MANN (Men's Advocacy Network of the NHF), a complementary response for men to the women's advocacy group WONN (Women's Outreach Network of NHF), and discusses its potency as an advocacy group. MANN's initial platform demanded changes in the NHF that required more consumer input and leadership to the NHF Board. MANN had also demanded that forty percent of the NHF Board and Executive Board be comprised of persons with hemophilia and/or HIV, and that the NHF pursue conflict-of-interest guidelines, and a Congressional Investigation. The author states that these demands had never materialized because the leadership of the NHF refused to allow them to be implemented, and that MANN is being manipulated by the NHF old guard. Further, the author claims that COTT (The Committee of Ten Thousand) is not influenced by NHF, and has made significant impacts in educating the government, media, and public, regarding the history leading to the HIV infection of persons with hemophilia. COTT also has profound influence on the Food and Drug Administration (FDA), and on the safety of the nation's blood supply, including the progress of investigations and litigations.

Keywords: Blood-Borne Pathogens Consumer Participation Female Hemophilia/*COMPLICATIONS Human HIV Infections/*COMPLICATIONS/TRANSMISSION Male Organizations *Patient Advocacy Patient Education *Power (Psychology) NEWSLETTER ARTICLE

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