Important note: Information in this article was accurate in 1993. The state of the art may have changed since the publication date.
Quality of life: psychological, family, and social correlates in children with hemophilia.
Diss Abstr Int [B]; 52(9):4672 1992. Unique Identifier : AIDSLINE ICDB/93682321 Tse AM; Univ. of Illinois at Chicago, Health Sciences Center
Abstract:
Nursing management programs for children with hemophilia successfully reduced the incidence of deformities and immobilization, resulting in a near normal quality of life for children affected by this problem. Children with hemophilia who received transfusions or coagulation factors between 1979 and 1985 were exposed to potentially HIV contaminated blood and clotting factors. Thus, a new stress has been imposed on children with hemophilia. This may have a potentially profound effect on nursing management of these children. This two-group comparative study explored the quality of life of children with hemophilia. The literature was analyzed to identify variables related to quality of life. An ecological framework was used to organize variable selection. Variables measured related to the child, family environment and support networks included behavior, coping, attitudes, the family environment, and perceived quality and nature of support received. The data were analyzed using descriptive statistics, comparison of means, and measures of association. The majority of the children in the hemophilia group were HIV seropositive. Responses on the instruments indicated that most families of children with hemophilia perceived themselves similar to the general population, yet children perceived themselves as being picked on more often than their healthy peers. Significant differences were found between responses of families with healthy children and families with children with hemophilia in the areas of family conflict and activities. Strong relationships were obtained between the parent's perception of the child's quality of life rating and (1) the child's behavior, (2) family conflict, (3) organization and (4) activities. These relationships were only present in families with children with hemophilia. Thus, the parent's perception of the child's quality of life was similar for both groups, either because of an effective support program at the care facility or because no differences exist. Future research focused on developing a measure of child quality of life and interventions to reduce family conflict and promote family activity is suggested. (Full text available from University Microfilms International, Ann Arbor, MI, as Order No. AAD92-03416).
Keywords: Adaptation, Psychological Attitude Child Child Behavior Conflict (Psychology) Family Hemophilia/*NURSING/PSYCHOLOGY Human HIV Seropositivity/*PSYCHOLOGY *Quality of Life Social Environment Social Support THESIS 930530
M9350993
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Important note: Information in this article was accurate in 1993. The state of the art may have changed since the publication date.
